Kleeftra Syndrome is a rare genetic disorder that affects growth, facial features are distinct (not as bad as Downes) ,speech, hearing, it goes on and on. Autism is an added problem as well.Gavin is non verbal, has issues with anyone touching his hands so sign language is almost impossible, has severe vision issues, and is going deaf-he already has bad hearing loss at age 10. There are around 200 cases world wide. My tadpole is the sweetest loving child and l won't trade him for the world!"