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FREE: Beckwith-Wiedemann Syndrome Magnets

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Description

The listing, Beckwith-Wiedemann Syndrome Magnets has ended.

I am raising awareness of my oldest daughter Victoria. Winner gets all 4. Victoria is a normal 13 year old. But she was born with bws.

Is an overgrowth disorder present at birth characterized by an increased Risk of childhood cancer n certain features. Where one side of the body is larger n longer then the other side.
Victoria right side is larger then her left side she does have umbilical cord hernia that we have to watch. 2 years ago she had 8 staples put in her right knee to stop it from growing so that the left side could catch up. The the left side is slowing catching up.

Please help use spread the word!!!

Questions & Comments

Fanned, watching & bidding!
I'd never heard of this until I stumbled upon your auction. I will help spread the word!!
Does this cause your daughter pain? It seems that it could: especially the staples!

May 25th, 2012 at 9:55:17 PM PDT by

witht the staples she has some pain, her back hurts alot if she doesnt worn normal shoes with the herina we have to watch it closely

she tells other kids that ask about what she has she tells them that she is a gift from god when i heard that i cried.

http://en.wikipedia.org/wiki/Beckwith%E2%80%93Wiedemann_syndrome

May 26th, 2012 at 5:49:36 PM PDT by

Fan and Watch

Fan me back

May 30th, 2012 at 7:20:12 AM PDT by

fanned back

Jun 3rd, 2012 at 11:42:10 AM PDT by

wow nice to her Victoria has such a lovely look to it

fanned u

Jun 3rd, 2012 at 6:06:04 AM PDT by

F&W my son has autism and my friends daughter has bws

Jun 4th, 2012 at 12:19:07 PM PDT by

Beckwith-Wiedemann Syndrome Magnets is in the Cars, Vehicles & Parts | Other Car Items category